Don't take my words as medical advice please! This video is JUST my story. Not advice. It's about the reasons that I haven't had to engage with endocrine therapies like Tamoxifen or Aromatase Inhibitors yet in my recovery from breast cancer. I actually misspoke in the video about the chance of my recurrence--the chance was at 2% BEFORE I had my second mastectomy. My chance is much less now that I have had my second mastectomy. As promised, I'm going to list here all of the reasons that my wisest doctor from UCSF told me that I didn't need to take any endocrine therapy:

My lesion size was 2mm (we don't have tumors in Lobular Cancer).
My mitotic score was extremely low. It was listed on my path report at "1" which is the lowest score.
My proliferation markers were also low, at "-1".
Progesterone positivity is key for lobular. Since my PR positivity was at 100%, she said that I have one of the best possible pathology profiles for overall survival (thus Tamoxifen isn't useful).

Other things that Dr. M told me that I failed to mention in the video:
Lobular cancer is more sensitive to hormone replacement therapy and alcohol use than Ductal is. I have stopped using both, completely.

I became a nutritionist soon after my first scans showed shadows ten years ago, and I credit my lifestyle for keeping my cancer growth low, but of course there's no way to prove that. Exercise is showing to be even more important than nutrition and my fitness was not great during that ten years! It is now.

- Related Videos:

My other video about having Lobular Cancer:    • My Breast Cancer Journey Part II (Now...  

The playlist of my entire Mastectomy Story:    • Mastectomy Story  

- Links:

The breast cancer index is found here:
https://www.breastcancerindex.com/

The Lobular Breast Cancer Alliance (LBCA) is the best place to find the work of expert ILC researchers like Dr. M: https://www.lobularbreastcancer.org

The best book I've found on how estrogen works is "Estrogen Matters" and here's a link to my favorite independent bookstore if you'd like to buy it there: https://www.powells.com/book/estrogen...


My professional YouTube channel is at    / @seekingdeeperhealth  

The land where I shot this video was once Kalapooia Tribal land. Join me by contributing to and learning from your own local indigenous farms here: https://www.soulfirefarm.org/get-invo...

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