Meet a quite extraordinary little boy, who holds the cure to some of the world’s most common diseases. Zach was born on Australia Day, a beautiful smiling baby. The doctors gave him a clean bill of health, and for 18 months his parents thought everything was normal. But as they would discover, little Zach has perhaps the rarest disease known to man – a genetic condition called Fibrodysplasia Ossificans Progressiva, or FOP. There are less than 800 known sufferers worldwide. As he ages, the soft tissue of Zach’s body slowly morphs into a second skeleton. His muscles are turning to bone. But Zach’s family haven’t given up hope.

This story originally aired on 11th August 2013 on Seven News Australia Sunday Night.

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