Join the rare disease community where patients, parents, and caregivers can learn more about the rare condition that’s part of their life.

By joining Raremark:
▫️ Find information and insights to navigate each stage of your journey
▫️ Make meaningful connections with people who understand how a rare disease can affect every aspect of your life…
▫️ Share your valuable experiences, such as life hacks and tips to help others along the way…
▫️ Have an impact on the way researchers think about your condition and how new treatments are developed

Join Raremark: https://bit.ly/30gHBZ4