After the video of her daughter getting her first tattoo went viral on TikTok, Niki is more determined to raise awareness about Lafora Disease. She discusses the symptoms of the ultra-rare disease, standing up to epilepsy stigma, and the tattoo TikTok of Ange that has 5.3 million views with Chelsea's Hope staff member Christine.

Other videos mentioned:
"Under the Lights" by Miles Levine https://seedandspark.com/fund/underth...
"Fighting the Rare" by Dr. Jordi and Jaume Duran https://www.fightingtherare.com/

The music is "Just Like a Butterfly" by Niki Markou, used with permission.

(c) Copyright Chelsea's Hope Lafora Children Research Fund

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. Our mission is to improve the lives of those affected by Lafora Disease and help accelerate the development of treatments. Learn more: https://chelseashope.org/

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