In Conversation with Mary Zazzi, who talks to Nona about being diagnosed with ET in 1983 when she was 17 years old, when her high platelet count was discovered after experiencing a DVT post knee surgery. It was very difficult for Mary to be told she had rare disease and was worried about her future but now 41 years later is feeling healthy and well. Mary also talks about how she had to plan her 2 successful pregnancies. Mary also talks about having cognitive behavioural therapy (CBT) when her mental health suffered and how much this helped her, and encourages people to reach out for help.

Mary has been a buddy for many years with MPN Voice, supporting many people, if you would like to have a buddy to talk to, for one-to-one support, please email [email protected]

The Young Patient Network Facebook group is for people with an MPN, aged 40 and under, providing a digital space where young people can meet and connect, share any worries or concerns, and chat with each other about what it’s like to live with a MPN.   / mpnvoiceyoungpatientnetwork  

We hope that you enjoyed this conversation, please send feedback and any questions to [email protected]. If you have any suggestions for future conversations please let us know.

We would like to thank Mary for taking part in this conversation with Nona.

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