My coeliac disease diagnosis story - Gluten free life
Coeliac by Design Coeliac by Design
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 Published On May 16, 2020

One of the main reasons I wanted to start writing my own blog was to help raise more awareness about coeliac disease, as currently it's a very underdiagnosed autoimmune condition, which unfortunately left undetected and not managed can lead to severe health complications.

In this quick video, I'm just chatting through what symptoms I had and how I was fortunately very quickly diagnosed with the condition thanks to my GP being completely on it.

I have also written a post on my site dedicated to the subject 'symptoms of coeliac disease' which you can check out by clicking on the link below https://www.coeliacbydesign.com/sympt.... But thought it would be good to share the list of symptoms from the post on here too.

I have checked out reputable sites to give you a run down on some of the most common symptoms of coeliac disease, adding in ones I have learnt about along the way too:

Recurring abdominal bloating and pain
Chronic diarrhoea/constipation/excessive wind
Irritable bowel syndrome symptoms (all bowel related conditions must be ruled out before an IBS diagnosis is confirmed)
Nausea
Vomiting
Decreased appetite
Recurring mouth ulcers
Pale sores inside the mouth
Tooth discoloration or loss of enamel
Liver and biliary tract disorders (transaminitis, fatty liver, primary sclerosing cholangitis, etc.)
Weight loss (but not always, some people gain weight)
Pale, foul-smelling stool (which often float and can remain in the water even after flushing)
Iron, vitamin B12, or folic acid deficiency
Anaemia that does not respond to iron therapy
Fatigue
Failure to thrive or short stature (commonly in children)
Delayed puberty
Pain in the joints
Tingling numbness in the legs
A skin rash called dermatitis herpetiformis (DH)
Unexplained infertility, recurrent miscarriage
Osteopenia (mild) or osteoporosis (more serious bone density problem)
Peripheral neuropathy
Neurological (nerve) problems such as ataxia (loss of coordination, poor balance)
Psychiatric disorders such as anxiety and depression
Hair loss
Headaches

Quick thing to add, is that some people with coeliac disease experience no symptoms at all and that why family screening is so important when a family member is diagnosed with CD.

I'm not medically trained and would advise anybody with any of the symptoms above (or any other things of concern) to chat to your GP. Discussing with them the possibility of you having coeliac disease and requesting that you are tested to rule it out. Always communicate with your GP until you get to the very bottom of what is causing you a problem.

Currently an accurate test result for coeliac disease can only be given if gluten has been included normally within the diet for 6 weeks prior to a blood test and endoscopy. And as coeliac disease can manifest at any time, a previous negative test does not mean that you have not since developed the condition.

To help others, and raise more awareness about the varied symptoms of coeliac disease, it would be great if you are able to just jot below your own experiences.

Take care
Liz x

Email - [email protected]
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