1:03:49
National Volunteer Month Webinar
33 views • 2 weeks ago
5:40
Genetic Testing for Rare and Undiagnosed Disorders
85 views • 3 weeks ago
1:04:29
Rare Disease Day Rare Teen Parents Webinar
333 views • 2 months ago
1:05
Francis Collins Teaser Trailer
33 views • 3 months ago
1:25
Preview of FARA Interview
58 views • 3 months ago
20:06
05 Overcoming Ableism While Parenting
28 views • 5 months ago
25:14
08 A Mother's Story: How My Son's Life Inspired Me to Make a Difference
18 views • 5 months ago
40:41
04 Transitioning from Childhood to Adulthood with Rare Disease
34 views • 5 months ago
1:57:28
The 2022 Rare Impact Awards
18 views • 5 months ago
25:48
01 From Bitter to Better: My Invisible Rare Disease
36 views • 5 months ago
46:16
07 Rare Breakthroughs: Hope Now And On The Horizon
25 views • 5 months ago
51:57
06 Rare Disease Onset and Diagnosis in Adulthood
84 views • 5 months ago
44:37
03 Beyond Coping: Resiliency While Rare
16 views • 5 months ago
43:51
02 Building and Quarterbacking Your Care Team
15 views • 5 months ago
49:06
Rare Breakthroughs: Hope Now and on the Horizon
47 views • 6 months ago
15:31
Closing Keynote: Dented, Not Broken
19 views • 6 months ago
41:30
Beyond the Disability or Diagnosis: Rare Disease in Adulthood
52 views • 6 months ago
43:12
Debunking the Myths of Palliative Care
25 views • 6 months ago
41:41
Rare in the Family: Family Planning and Decision-making
24 views • 6 months ago
47:54
Living with Uncertainty
28 views • 6 months ago
49:06
Rare Breakthroughs: Hope Now and on the Horizon
16 views • 6 months ago
9:18
General Session Introduction
9 views • 6 months ago
17:10
Opening Keynote: Resilient and Rare
14 views • 6 months ago
39:56
How to Participate in Rare Disease Research
51 views • 6 months ago
4:36
2023 NORD Breakthrough Summit: "I Am Enough" by Casey McPherson
89 views • 6 months ago
1:50
Rare Disease Drug Development Education Series Trailer
685 views • 7 months ago
1:12:26
Involucrar a las comunidades latinas de enfermedades raras
47 views • 7 months ago
1:11:00
Engaging Latino Rare Disease Communities: Lessons from NORD’s Latinos and Rare Program
169 views • 7 months ago
2:23:33
NORD Rare Impact Awards | 2023
135 views • 1 year ago
1:59
Abbey Meyers Accepts Lifetime Achievement Award
109 views • 1 year ago
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