Liljana is a spunky tween who loves art and crocheting. She faced chronic lung, ear and sinus infections for many years and eventually became so sick that she had to be transported to St. Louis Children’s via the Mobile Intensive Care Unit from her community hospital.

After a run of tests to rule out various diseases, Liljana’s family started a long journey to understand a rare genetic condition known as primary ciliary dyskinesia (PCD) and the role it played in her health. Liljana was also diagnosed with another rare condition known as adrenal insufficiency (AI), which is an uncommon illness that occurs when the body doesn’t make enough of certain hormones such as cortisol and aldosterone. Meet Liljana and learn more about her journey with St. Louis Children’s Hospital.